HELP AT HOME RAISING FUNDS FOR FINLEY

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Finley is a gorgeous 23 month little boy who is very poorly with a rare condition known as Potocki Lupski Syndrome and Charcot Marie tooth disease. He will need support throughout his life and has to be assessed, tested etc to learn about his illness.

Help At Home aims to raise as much as possible to contribute to the costs of sending Finley and his family to Paris in September where he will be seen together with another child with the same rare conditions. Finley is one of 5 children in the world with this very rare condition.

His grandfather is Simon Morton owner of Sunshine.fm. Simon has been a great support to the charity since it started two years ago and now his family needs our support, please come along on the 7th July, you will have a great evening hearing a fantastic talented young lady who will no doubt be a great celebrity in the future.

Four events have been organised to raise funds to help Finley’s family who need our help & support, thank you.

Finley has two conditions potocki lupski syndrome and Charcot Marie tooth disease. It’s the two diseases combined that make his condition so rare. There are maybe 400 children with Potocki Lupski syndrome but only 5 that we know of with the two together that’s what makes things harder for him as they seem to battle against each other and make each syndrome worse!

On 7th July Stefanie will be singing songs from musicals, ballads and film songs at Los Rosales Restaurant, 7.30pm. Lemon Tree Road. Stefanie is 14 years old, with a much more mature singing voice, lovely to listen and watch. She has been in various children’s choir, both in the USA and Spain, but last year has also been singing solo for various charities here on the Costa Blanca.

At the tender age of 4 she sang nursery rhymes on cruise ships with the entertainment staff, and her interest in musicals was piqued when in December of 2004 she watch Joseph performed while skiing in Germany.

All proceeds from the Euro3 entrance fee will be going to the Help At Home charity, especially for children with special needs and the whole event will be filmed by VIVA TV. There is an option to have a meal before the show, these tickets cost EURO 9 and need to be booked beforehand. Tickets can be bought at either of the Help At Home shops in Playa Flamenca, Calle Niagara 2, 409 Orihuela Costa Tlf: 691. 585 167 or from La Perla Negra Restaurant in Los Montesinos.

Telephone 966 292 392 for further details.

Filed under: http://www.theleader.info/article/39612/

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